Consumer Consent Information

The Consumer Consent Information use case addresses the need for a standard, shared way to manage consent forms and consent-related information in a health information exchange environment. This use case helps organizations determine what information, if any, a patient has consented to share and with which providers the information may be shared.

Consumer Consent Information

State and federal laws offer privacy protection for individuals and their health information. Certain categories of health information require greater protection than physical health information. For example, state and federal laws require healthcare providers to obtain written consent from a patient before disclosing behavioral health or substance use disorder information to another person or organization.

Although laws require this written consent, there has been no standard written form for patients to use for providing consent. This lack of standardization has led to confusion and conflicting consent forms, and has become a barrier to information sharing and care coordination.

The following documents are available:

Use Case Summary:

The “Persona” Story

Alex Gonzales

Alex Gonzales and his family have been going through some difficult times. A motorcycle accident left him disabled, and he was recently let go from his job as an auto mechanic.

Alex has always been a private and proud individual, and his new life has challenged that attitude. He feels like he has lost control of his privacy and his own life. Events from his past keep coming up with caregivers, even reaching back to a problem he had with alcohol before his marriage. Everything from Alex’s past seems to be in his health records and it makes him feel uncomfortable every time he sees a healthcare office worker open a file or type on a laptop

Recently, Alex has been working with a care coordinator as he considers a move to a new city. Alex sees the move as a chance for him and his family to start afresh, but he is concerned about his healthcare information and his past coming back to haunt him. Having just built up trust and rapport with his current healthcare providers, Alex doesn’t like the idea of sharing his health information with strangers at new healthcare institutions. And he is concerned that his health information could leave the doctor’s office. What if a new employer found out about his former alcohol addiction?

His care coordinator was able to reassure Alex that modern protections will keep his information safe. Their practice participates in the Consumer Consent Information use case, which means the forms Alex signs relating to his private information are automatically checked any time someone wants access to Alex’s information. This gives Alex an added comfort regarding his privacy, ensuring control over his information, and his past, are in the right hands. His own.