Caregiver Contact Information

The Caregiver Contact Information use case scenario allows a consumer to share contact information for their chosen caregiver(s). This contact information can then be made available to a consumer’s care team members.

Care Plan- Integrated Care Bridge Record

“Caregiver” is most frequently defined as a person who provides direct care (as for children, elderly people, or the chronically ill). The term typically implies a family member, friend or paid assistant, such as a home health aide. The term also often refers to someone performing this role without compensation. An estimated 34 million unpaid caregivers were caring for others in the United States in 2008. A majority of caregivers are family members (83%).

Caregivers are often the best source of information about the patients for whom they provide care. Unfortunately, healthcare providers (doctors, pharmacists, health plans, etc.) may not know contact information for a patient’s caregiver, or even that a patient has a caregiver. This lack of information can create additional work for healthcare professionals, can delay treatment or care, and in worst cases can lead to negative outcomes because needed information about the patient cannot be found.

Care team members need a way to find contact information for caregivers involved in their patients’ care quickly and efficiently.

“Caregiver Contact Information” is a scenario under the Consumer Preference Management use case.

The following documents are available:

Use Case Summary:

The “Persona” Story

Viola C

Viola Campbell has never liked giving up control, especially around her health. She has had to be careful her whole life, beginning when she was diagnosed with epilepsy in her late teens.

Taking care of her epilepsy has been difficult, but something she could manage with the right medication. Yet as she has gotten older it has become more difficult to remember her medications, and, more troublesome, whether she had already taken a pill.

A few months ago, Viola started to notice some decline in her ability to participate in daily activities. Thanks to her lifelong dedication to oversee her own healthcare, she had a care team in place and knew who to call. Soon, she was diagnosed with glaucoma and chronic obstructive pulmonary disease. It was then that she felt she needed to make a change and, more importantly, she needed help.

Viola asked her daughter, Jessica Campbell, to act as her caregiver, assisting with medication and her care routine. Thanks to the Caregiver Contact Information use case scenario, Jessica has designated herself as the caregiver contact for her mother.

Recently, one afternoon Viola fainted and hit her head. Confused and panicking, Viola called emergency services who rushed her to the hospital. Viola was so dizzy she couldn’t remember the names of her medications.

The hospital was able to quickly find Jessica’s contact information as Viola’s designated caregiver. Jessica shared important information about her mother’s health and medication with the hospital staff. Because the correct information was available at the start of Viola’s care, the hospital staff members were able to efficiently start Viola on the path for diagnosis and recovery.